It’s Her World. We Just Live In It.
Sometimes I look at Vista and there’s this sense of awe and amazement that this little child is mine.
But as each day passes, she’s less ‘mine’ and more her own person.
Sometimes I have to remind myself to step back and remember that the way she reacts to things isn’t necessarily going to be the same way I react to things.
She has her own way of doing things. And is definite about how her world is structured.
As time goes on, we realize more and more, that she’s not fitting into our world but molding us into what she needs her world to be.
And that’s not without it’s challenges sometimes.
One of our biggest frustrations has been around asking her to do simple things. Every day tasks. Using words she knows. And yet there seems to be no comprehension.
We assumed it was her three year old self being, well, a three year old. Defiant. Willful. All the things a child that age can tend towards.
Until we did one of a speech and language assessment with her a few weeks ago.
Her verbal scores came back as expected. She’s progressing wonderfully in her talking and ability to communicate.
Her receptive scores, those that indicate her ability to take in and process what we’re saying, were a surprise.
Despite the fact she knows the words, the meaning doesn’t always translate when you speak with her.
So when we we’re frustrated over her seeming lack of comprehension, it’s because… yeah… she really doesn’t understand.
Complete *headdesk* moment.
A neuropathway issue. Apparently it’s not all together uncommon in kids with her types of brain malformations.
But now we know. And that means we can start focusing on trying to rewire those pathways. Because a childs brain is an amazing, changing, thing.
She may not understand us, but we’re slowly learning to understand her better. And changing the way we do things to help her be who we know she can be.
We’ve started adding back in some signing, to see if visual cues help with the comprehension. But beyond that, we don’t have a lot to go on.
So I’m turning to my brilliant blogging / twitter friends.
Suggestions on what you would do? What you’ve seen work? What you think we could try?