Silly Simple Words

Thank you to everyone for your hugs and love over the past few days.  They’re both needed and appreciated.

We’ve been watching V like a hawk the past few days.

Super vigilant and on high alert.  The ultimate helicopter parents.

It’s hard not to be.

Luckily though, it seems like the after effects from V’s seizure are mild.

She was a bit unsteady on her feet Sunday morning, but that has corrected itself, and we haven’t seen any other physical issues.

There doesn’t seem to be any behavioral issues from the seizure, either (everyone cheer!!).

It looks like this seziure went after her language center instead.

She’s had seizures in the past where she lost words, and when as a toddler you only have a few words to begin with, it meant she lost her ability to speak.

Thankfully, this isn’t the case this time.

But it’s the weird things that you take for granted that hits you like a punch in the gut when you least expect it.

Last night V wanted to dress up as a kitty cat.  She loves to dress up as a cat with a nose and whiskers painted on her face using my eyeliner.  A couple of weeks ago, I ordered a cat costume for her off Etsy.  Just a little set of ears and a tail.  And so last night when she wanted to dress up, I mentioned that we’d have to wait for the costume to come in the mail.

“Mail?” she said.  “You mean like press send?”

“No sweetie,” I replied.  “Not email.  Mail.  It will come to the mailbox and then we can go get it.”

“Mailbox?” she looked at me confused.  “What’s mailbox?”

“You know… a mailbox… don’t you remember how we walk to the mailbox to get the mail?”

A memory.  A word.  Something simple, and really, without a lot of meaning.  But *poof*, it was gone.  She had no idea what I was talking about.

I saw it again this morning.  She wanted to dress up in one of her play silks.

“Can you tie it around my elbow?”

I looked at her, “Where do you want me to tie it?”

She pointed at her shoulder “My elbow.”

I sat next to her and gently said, “That’s your shoulder, not your elbow.  Where’s your elbow?”

She again pointed to her shoulder.

We proceeded to do a body inventory.  Body parts she’s known and been able to name for years.

She knew where her knee was, but the word ankle was also missing for her again.

*gut punch*

Silly simple words.  Word I know will come back.  Words I know we can easily correct and reteach her if we need to.

But, oh those words.

Their absence says so much.

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7 Responses to Silly Simple Words

  • Lu says:

    Oh Jenn I am just so sorry. Those moments as a mama are so real and raw. V is such a strong and incredible little girl. She’s amazing like her mama, so I know she will be alright. Huge hugs to you and Bil. xoxo

  • PsychMamma says:

    Ooof. This post made me cry for you and for her. How awful to have to work all over again to get those words back. I hope with everything in me that they find away to fix this so that you guys don’t have to go through this again.

    Hugs & love. Big time.

  • punkinmama says:

    *gut punch* indeed. My heart hurts for you.

    I will give a cheer for no behavioral issues though!

  • Michelle says:

    Oh my, it’s so hard. Love her lots and love yourself. You both need it.

  • Lisa says:

    Gut punch for sure. Ugh, that sucks. Keeping in my heart and thoughts. Hugs.

  • crying for you. you are an incredible mother. we are keeping you in our closest thoughts.

  • Tam says:

    There is not a damn thing I can say to make any of this better or easier for you.

    I will say though, that Vista is incredibly lucky to have you there with her as she fights back against her body’s betrayal of her. And no matter what her body does to her, it won’t crush her spirit. And a really big part of that is because of you as her mother. x

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