croup

Just call me Dr. Mom

I’m beginning to realize that last winter we really lucked out.

Vista was for the most part healthy and didn’t come down with a lot of colds or sickness.

This year… *sigh*  Is a different story.

As soon as she gets over one cold, we get a week off before she starts getting  sick again.

Bil and I are so over it.

v asthma spacer Just call me Dr. MomThe whining,  the hysterics every time she sneezes, the being up all night because her nose is runny and that is an absolute crisis in her world.

And with every round of being sick has come a round of croup.  Except I don’t think it’s croup.  I think  it’s the start of asthma.

So with this latest round of sickness she’s back on inhalers.

There are a few things you learn very quickly when you have a child who is chronically ill.  That is to trust your instincts, trust that you know your child better than any doctor, and that doctors are not infallible.

I spend a large part of my days, when something new comes up, reading medical journals online.  Researching, cross referencing, eliminating possibilities.

When Vista was little, and her doctors insisted that she was fine and just slow to develop because she was a preemie, this research got them to agree to do an MRI (against their better judgment – they were just humoring me, you understand).   But mother’s instinct didn’t fail me and the doctors were shocked when her scan revealed a brain malformation and missing pieces.

And when I suggested when she was only 3 months old, that she might have a milk allergy, which was summarily dismissed by all her doctors… well, I should have listened to my mother’s instinct then.  By the time she was a year old, her GI specialist grudgingly agreed that she might have an *mild intolerance*.  Months of food diaries and elimination diets revealed a severe milk allergy.  Bad enough that she couldn’t even eat beef and a kiss on the cheek from someone who had just had a drink of coffee with creamer in it would leave an angry red mark on her skin.

Now I’m preparing  to do battle on the asthma front.

This time I have my own experience to draw from, though.

As a kid, I was diagnosed with croup over and over.

I had chronic bronchial infections.  There were years I was on antibiotics 11 months out of the year.

But it wasn’t until I was a teenager that a doctor finally shook his head, handed me an inhaler, and sent me for asthma testing, which confirmed  the diagnosis.

See, the problem was, even in the midst of an asthma attack, I don’t get the tell tale bronchial spasms that are what most doctors use to diagnose asthma.

After Vista’s coughing attack at Christmas that left her breathless and blue, we found out she doesn’t get bronchial spasms either. But the attack she had was a carbon copy of what my asthma attacks used to be like.

So, now, once again I am researching, reading, and preparing to make my case before the judge doctor.

Find Me

TwitterRSS
FacebookEmail

I’m Connected